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Experienced manager with 16+ years experience in innovation, data, business management and strategy in CPG and Pharma with leading edge expertise in digital, AI, tech, analytics. By day, I transform diagnostics of patients with rare Lysosomal Storage Disorders with data and AI at Sanofi. By night, I run the registered charity Eyes on the Future to save my daughter Vicky’s sight and that of many others’ affected by ultra rare eye diseases. My Superpower: Creating waves and making magic happen through connections, collaboration and innovation. My Belief: I believe in a world where everybody deserves a treatment for their disease no matter how rare, expensive and difficult. Eyes on the Future Achievements so far: - Seeded science all over the world. Raised over 1 Million $ personally and 3.3 Million $ as a community to support preclinical research on RDH12 Inherited Retinal Dystrophies. Clinical trial plans for 2023 - Fostered collaboration and scientific progress: first ever scientific conference, first ever scientific landscape and first ever global patient day. - Engaged a community of patients from 20+ countries worldwide affected by the same ultra rare condition. - Affiliation and partnership with leading medical and eye charities (Eurordis, LifeArc, Retina International, Global Genes…) -Efforts covered by press internationally from BBC, Vanity Fair, London Evening Standard, the Huffington Post, Corriere della Sera and more.
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